1996 San Francisco

This meeting was held in San Francisco, CA on October 13-16, 1996. More than 500 attendees attended the meeting to hear the latest clinical and research findings on CFS. The Research portion of this meeting consisted of sessions on Epidemiology, Interdisciplinary Studies, Microbiology and Immunology and Clinical Aspects and was held Sun. Oct. 13 through Monday Oct. 14. The Clinical Session, which was geared toward the practicing health care professional as well as to patients, was held Tuesday and Wednesday.

Tapes of the Plenary speeches are available through InfoMedix. The scientific presentations will be published in the American Journal of Medicine in 1997 (the publication date has not been announced). The conference packets (all research and clinical abstracts) are available and for sale at $15 + shipping costs ($3 in U.S., $6 overseas) at the phone number or address listed here.

Agenda of the October 1996 Meeting of the IACFS
Sheraton Palace, San Francisco, California

Sunday, October 13

9:00 - 12:00 Noon Special Session : Satellite Symposium in Conjunction with American College of Nutrition

Panel Discussion: Controversies in the Nutritional Management of CFS

IACFS Research Conference Opens

1:00 - 1:15 PM: Opening Remarks

Mark Demitrack, MD, Conference Chair
Paul H. Levine, MD, President, IACFS

1:15 - 2:00 PM: Plenary Address

Perspectives on Chronic Fatigue Syndrome and Its Treatment
Stephen Straus, MD

2:00 - 3:30 PM Scientific Session I - Epidemiology

Co-Chairs: Paul H. Levine, MD and Andrew Lloyd, MD

Plenary Address:

Fatigue and CFS: Shifting Boundaries and Attributions
Andrew Lloyd, MD

Oral Presentations of Peer-reviewed Research in Epidemiology
and questions from the floor.

3:30 - 5:00 PM Scientific Session II - Microbiology and Immunology

Co-Chairs: Jay Levy, MD and Sudhir Gupta, MD, PhD

Plenary Address:

The Immunology of Chronic Fatigue Syndrome
Theresa Whiteside, PhD

Oral Presentations of Peer-reviewed Research in Microbiology and Immunology
and Questions from the floor.

5:00 - 6:30 PM Break or Dinner Workshops # R1, # R2, # R3

R1 Do We Need a Case Definition for CFS in Children Under 10 Years Old?

Chair: Karen Jordan, PhD
Panel: David S. Bell, MD, James Jones, MD, and Leonard Jason, PhD

R2 Neuropsychological Functioning in CFS

Chair: John DeLuca , PhD
Panel: Karen Schmaling PhD, Paul Marshall PhD, Jordan Grafman PhD

R3 NIH Research Grant Opportunities: Application and Review Process

Chair: Marcel Pons, PhD

Scientific Poster Session I

Moderated Exhibit of Selected Scientific Studies
Co-Chairs: Dharam V. Ablashi, DVM, Murray Gardner, MD, Sudhir Gupta, MD, PhD

6:30 - 9:00 PM Viewing of Posters

Moderated Discussion Breakout Groups

7:00 - 8:00 PM Epidemiology
8:00 - 9:30 PM Microbiology/Immunology


Monday, Oct. 14 IACFS Research Conference (continued)

8:00 - 9:30 AM Scientific Session III - Interdisciplinary Studies

Co-Chairs: Mark Demitrack, MD and Iris Bell, MD

Plenary Address:

Multiple Chemical Sensitivity and Clinical Ecology
Iris Bell, MD

Oral Presentations of Peer-reviewed Research in Interdisciplinary Studies
and Questions from the floor.

9:30- 11:00 AM Scientific Session IV - Physiology

Co-Chairs: James Jones, MD and Peter Behan, MD

Plenary Address:

Muscle studies and organophosphates
Peter Behan, MD

Oral Presentations of Peer-reviewed Research in Physiology
and Questions from the floor.

11:00 - 1:00 PM Luncheon Workshops # R4 & # R5

R4 Immunology

Co-Chairs: Nancy Klimas, MD and Jay A. Levy, MD

R5 The Quest for Homogeneity in the Case Definition

Chair: Benjamin Natelson, MD
Participants: Anthony Komaroff, MD, James Jones, MD, Dedra Buchwald, MD, and Frank Sodetz, PhD

1:00 - 2:00 PM Special Address

Stress-Associated Immune Modulation: Implications for Health
Ronald Glaser, PhD

2:00 - 3:30 PM Scientific Session V - Clinical Studies

Co-Chairs: Dedra Buchwald, MD and Michael Sharpe, MD

Plenary Address:

Cognitive Behavioral Therapy: Implications for CFS
Michael Sharpe, MD

Oral Presentations of Peer-reviewed Research in Clinical Studies
and Questions from the floor.

3:30 - 6:30 PM Scientific Poster Session II

Moderated Exhibit of Selected Scientific Studies
Co-Chairs: Dharam Ablashi, DVM, Murray Gardner, MD, and Sudhir Gupta, MD, PhD

3:30 - 4:00 PM Viewing of Posters

Discussion Breakout Groups:

4:00 - 5:30 PM Interdisciplinary & Physiology
5:30 - 6:30 PM Clinical Studies

7:00 - 9:00 PM Banquet

Presentation of 1st Rudy Perpich Memorial Award to Alexis Shelokov, MD

Interface of Mind and Body: Lessons learned from breast cancer patients regarding long-term outcomes and treatment strategies
David Spiegel, MD


Tuesday, Oct.15 IACFS Clinical Conference Opens

Perspectives on the Management of CFS

Clinical Session I

8:30 - 8:45 AM Welcoming Remarks

David S. Bell, MD, Chair Clinical Program

8:45 - 9:15 AM Review of Research Conference

Anthony Komaroff, MD

9:15 - 10:00 AM Psychological Influence on Immunoendocrine Interactions

Janice Kiecolt-Glaser, MD

10:00 - 10:45 AM Neurally Mediated Hypotension in CFS

Presenter: Peter Rowe, MD
Discussant: Stanley Schwartz, MD

10:45 - 11:30 AM Perspectives on Gulf War Illness and CFS

Keiji Fukuda, MD

11:30 - 12:00 Noon Similarities between Post-Polio Syndrome and CFS:
A Common Pathophysiology?

Richard Bruno, MD

12:00 - 12:30 PM Q & A Session

12:30 - 1:30 PM Luncheon Workshops # C1, # C2

C1 Doctor to Doctor (closed session)

Co-Chairs: Nancy Klimas, MD and Mark Loveless, MD

C2 Coping and the CFS Experience

Co-chairs: Patricia Fennell, CSW and Fred Friedberg, PhD.

Clinical Session II

1:30 - 2:30 PM Overview of the Clinical Approach to CFS:
Current Treatment Strategies in the US and Abroad

Co-Chairs: Dedra Buchwald, MD, David Klonoff, MD
Panel: Kenny DeMierlier, MD, Nancy Klimas, MD, Charles Lapp, MD, and Mark Loveless, MD

2:30 - 3:00 PM Panel Discussion

CFS in Adolescents
David Bell, MD and James Jones, MD

3:00 - 3:15 PM Q & A Session

3:15 - 4:45 PM Rehabilitation Strategies

Co-Chairs: Sue Ann Sisto, PhD and Gloria Furst, OTR/L, MPH
Panel: Donald Uslan, MA, MBA, CRC, Linda Miller Iger, PhD

4:45 - 5:15 PM Q & A Session

(Extended timeframe for individual questions)

5:15 - 6:30 PM IACFS Business Meeting

7:00 - 8:30 PM Dinner Workshops # C3 & # C4

C3 Personality, Lifestyle and Stress in CFS

Noah Oderberg, PhD

C4 Complementary Medicine and Nutritional Controversies

Chairs: Paul H. Levine, MD and John Renner, MD


Wednesday, October 16

IACFS Clinical Conference (continued)

Clinical Session III

8:30 - 9:45 AM Psychosocial Factors in Predicting Recovery

Chair: Fred Friedberg, PhD
Panel: Patricia Fennell, CSW-R, Leonard Jason, PhD,
Barbara Pino, MA, MFCC, and Barbara J. Saltzstein, MSW

9:45 - 10:00 AM Q & A Session

Clinical Session IV - Science, The Media, the Courts, the Government and the Patient

A discussion of different perspectives on medical issues and how to determine "the facts"

Chair: Paul H. Levine, MD
Panelists Representing Science, the Media, the Courts, the Government, and the Patient

10:00 - 12:30 Perspectives on Disability

Introductory Remarks
Paul H. Levine, MD

Panel I
Peter Manu, MD, Jordan Grafman, PhD, Barry Make, MD, and Thomas Lane, MD

Panel II
Daniel Peterson, MD, Stuart Sandhaus, Esq and Gerard Engelskirchen, Esq
Discussants: Marcia Scott, MD, Others - TBA

Q & A

12:30 - 1:30 PM Luncheon Workshops # C5, # C6, and # C7

C5 Individual Case Review (closed session)

Panel: Leading Clinical Experts

C6 International Clinical and Research Perspectives

Panel: Paul H. Levine, MD and Kenny de Meirlier, MD

C7 Applying for and Retaining Social Security and Private Disability

Panel: Stuart Sandhaus, Esq. and Gerard Engelkirchen, Esq.

Clinical Session IV - continued

1:45 - 2:15 PM Rudy Perpich Memorial Lecture

CFS: Syndrome or Disease?
Alexis Shelokov, MD

2:15 - 3:00 PM Silicone Implants and Immunologic Disorders: An Ongoing Controversy

Presenter: Henry Claman, MD
Discussant: Daniel Clauw, MD

3:00 - 3:45 PM Media Perspectives

The Newspaper Perspective
Thomas Maugh (Los Angeles Times)

The Television Perspective
Nancy Snyderman, MD (ABC-TV News)

3:45 - 5 PM Panel discussion with Q & A Session

Participants: Above speakers plus Marya Grambs, George Rutherford, MD, and Thomas Sheridan

5:00 - 5:15 PM Concluding Remarks

Mark A. Demitrack, MD, Paul H. Levine, MD, and David S. Bell, MD